Monday, September 5, 2016

Cystic Fibrosis Night with the Stockton Heat

We are hosting a Cystic Fibrosis Foundation fundraiser at the Stockton Heat on October 15th.   We would love to invite the team and have a great team night out.  We got seats in the Lower Premium but there are four options for seats.  If you call Mark Hicks to order the tickets he can make sure we are in the same area.  His number is 209-373-1523.  Otherwise, we will have a booth on the floor with raffles and are hoping to get a group picture after the game.  The arena is pretty small so I am confident we will be able to find each other.

Please bring your family and friends. It is the opening night for the Heat and should be a high energy Saturday night.  

To order tickets on-line use the link: https://stocktonheat.formstack.com/forms/fundraisertix
Select Cystic Fibrosis Foundation as your group.

Tuesday, August 16, 2016

Having CF does not Rock but We are going to Rock CF

EXTREME Hike,
After his last hospitalization, Owen received a metal from the Rock CF organization.  He was inspired and shared with us that although "CF Does not Rock but we CAN ROCK CF."  Gary and I are using this inspiration to charge us to hike 22 miles.  Owen is fighting daily for his health, we are working to set a good example and provide for Owen the role models he deserves.  Although Owen is not allowed to Hike, he has gone on countless training  bike rides and runs with us.  He is working hard to improve his health by using exercise and proper completion of his treatments. 

Please consider joining us or supporting us as we embark on this epic hike!  We appreciate every donation!  We see it as a step towards a cure, perhaps one day Owen will spend 4 hours a day playing and exercising and not doing treatment.

To support or join us: http://fightcf.cff.org/goto/HikeForOwen

Tuesday, July 12, 2016

Back at Camp Kaiser

After three years we are back in the hospital.  Owen is much older and wiser than last time.  We have been trying a few new airway clearance techniques and enjoying the healthy delicious food.  We are grateful for all the treatments and medications that have kept him hospital clear for so long.  We are taking full advantage of this stay to improve his health and not come back again for a while.

Thank you to everyone for your kind thoughts and prayers!  We appreciate everything you do xoxo

Tuesday, April 26, 2016

Hello Team,
We stride to make better tomorrows for those fighting cystic fibrosis. On Thursday, Owen will be under going a bronchoscopy to evaluate the health of his lungs. No big deal, he has been having some issues lately and we want to make sure we are not missing anything. We would appreciate any and all prayers and good vibes sent his way. Owen will be watching the NFL draft from the comfort of his bed while eating an unlimited supply of popsicles so he is doing well with the anticipation.
Having said that, we are very much aware that it is the donations and efforts of people like yourselves that have afforded him the medications and treatment therapies that have kept him hospital and bronchoscopy free for the last 3 years.
Thank you all for your well wishes, donations, sweatshirt and team Goin' For Owen shirt purchases. Every dollar goes towards a cure for those fighting every day.

http://fightcf.cff.org/site/TR?px=1490021&fr_id=5078&pg=personal